Molly Mattingly, Head of Learning Disability Programmes responds to the CQC report showing that people with learning disabilities are often not at the centre of their own care:

Person centred planning is key for people with learning disabilities to be supported properly

“It is disappointing that after so many years talking about personalisation and the need for person centred planning, it is still not embedded in care services. As usual there is a gulf between the rhetoric and policy and actual care delivery practice on the ground.

Person centred planning is key to ensuring that every individual with learning disabilities is being supported and treated properly. Just because people have learning disabilities does not mean that they are not capable of being involved in decisions that affect their lives. Families and those who know and care about people with learning disabilities are also important, but too often can be seen as “outsiders”. This is not helpful and maintaining relationships with family and friends should be a requirement in those cares services.

Our involvement with the Department of Health, The Impact of Person Centred Planning in 2005 showed that putting individuals with learning disabilities at the heart of their own care planning process leads to better outcomes. People should be able to choose what is most appropriate for them. Having choice and control allows for a better quality of life, as well delivering clear psychological benefits of empowering individuals to be directly involved in their care decisions – Decisions not taken for them but with them.

However, if we are to see a real change and significant improvement in the delivery of effective care services and its associated benefits, it is essential that we see both a stronger requirement on organisations and services to deliver person-centred approaches, as well as appropriate training and support for health and social care staff.”